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NASCARR offers a variety of ways for individuals and families affected by SCAs to participate. With a nationwide network of clinical centers and research programs, the NASCARR mission is to engage families and individuals with resources needed to help them navigate various options and connect with available supports and advocacy groups dedicated to these rare conditions.
In addition to connecting individuals and families to clinical and research programs dedicated to SCAs, NASCARR also seeks to support the entire SCA community through our network-wide natural history studies and clinical research opportunities. The goals of the NASCARR research efforts are to identify meaningful outcomes for the patient community and advance the field of SCA research.
We are pleased to offer a number of ways to participate.